Defining Accessibility & Accessible Research Companion Site

• Office of Indigenous Initiatives (Land Acknowledgement)
• Decolonizing and Indigenizing Teaching and Learning
• Find out more about local Indigenous territories and languages
• Queen’s University Accessibility Policy
• Rise 360 Accessibility Conformance Report
• Keyboard-accessible navigation

Video

• Meaningful Land Acknowledgements

Bailie, J., Fortune, N., Plunkett, K., Gordon, J., & Llewellyn, G. (2023). A call to action for more disability-inclusive health policy and systems research. BMJ Global Health, 8(3), 1–7. https://doi.org/10.1136/bmjgh-2022-011561

Lau, S., Nirmalanathan, K., Khan, M., Gauthier, C., Maisel, J., & Novak, A. (2020). A Canadian Roadmap for Accessibility Standards. Canadian Standards Association, (November). Retrieved from https://www.csagroup.org/wp-content/uploads/CSA-Group-Research-Canadian-Roadmap-for-Accessibility-Standards.pdf

World Health Organization (2023). Disability. Retrieved from https://www.who.int/news-room/fact-sheets/detail/disability-and-health#:~:text=An%20estimated%201.3%20billion%20people,earlier%20than%20those%20without%20disabilities

Canadian Institute of Health Research. (2022). Findings from CIHR Environmental Scan on Accessibility and Systemic Ableism in Research Funding Systems 2021-2022. Retrieved from https://cihr-irsc.gc.ca/e/53280.html

Honisch, S. S., & Hill, G. T. (2022). Accessibility in Research : From Design to Dissemination.

Olsen, J., Griffiths, M., Soorenian, A., & Porter, R. (2020). Reporting from the Margins: Disabled Academics Reflections on Higher Education. Scandinavian Journal of Disability Research: SJDR, 22(1), 265–274. https://doi.org/10.16993/sjdr.670

St. John, B. M., Hickey, E., Kastern, E., Russell, C., Russell, T., Mathy, A., Ausderau, K. K. (2022). Opening the door to university health research: recommendations for increasing accessibility for individuals with intellectual disability. International Journal for Equity in Health, 21(1), 1–13. https://doi.org/10.1186/s12939-022-01730-4

Swenor, B. K., Munoz, B., & Meeks, L. M. (2020). A decade of decline: Grant funding for researchers with disabilities 2008 to 2018. PLOS ONE, 15(3), e0228686–e0228686. https://doi.org/10.1371/journal.pone.0228686

Videos

• Barriers to Accessible Research
• Supporting students with disabilities

CAST (2018). Universal Design for Learning Guidelines version 2.2. Retrieved from http://udlguidelines.cast.org

Center for Universal Design. (1997). The principles of universal design. Retrieved from https://design.ncsu.edu/research/center-for-universal-design/

Croft, L., Harrison, E., Grant-Young, J., McGillivray, K., Sebring, J. C., & Rice, C. (2024). Toward access justice in the academy: Centring episodic disability to revision research methodologies. International Journal of Qualitative Methods, 23, 16094069241227075.

Fraser-Barbour, E., Robinson, S., Gendera, S., Burton-Clark, I., Fisher, K. R., Alexander, J., & Howe, K. (2023). Shifting power to people with disability in co-designed research. Disability & Society, 1–22. https://doi.org/10.1080/09687599.2023.2279932

Honisch, S. S., & Hill, G. T. (2022). Accessibility in Research : From Design to Dissemination.

Katz, J. (2018). Ensouling our schools: A universally designed framework for mental health, well-being, and reconciliation (Vol. 3). Portage & Main Press.

Rios, D., Magasi, S., Novak, C., & Harniss, M. (2016). Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies. American Journal of Public Health, 106(12), 2137–2144. https://doi.org/10.2105/AJPH.2016.303448

Strnadová, I., Dowse, L., & Watfern, C. (2020). Doing Research Inclusively: Guidelines for  Co-Producing Research with People with Disability. DIIU UNSW Sydney.

Additional Resources

• Ensouling Our Schools | Portage & Main Press/HighWater Press
• Instructions for assessing reading level
• Inclusive Language Guidelines
• Learn how to add a heading style
• Improve accessibility with the Accessibility Checker
• Make your Excel documents accessible to people with disabilities
•  
• Web Content Accessibility Guidelines 2.1 (WCAG)

Videos

• Research co-creation
• Conducting accessible research
• Institutional Support

Bailie, J., Fortune, N., Plunkett, K., Gordon, J., & Llewellyn, G. (2023). A call to action for more disability-inclusive health policy and systems research. BMJ Global Health, 8(3), 1–7. https://doi.org/10.1136/bmjgh-2022-011561
 
Baker, J., & Vasseur, L. (2021). Inclusion, Diversity, Equity & Accessibility (IDEA) Good Practices for Researchers. Canadian commission for UNESCO.
 
Brown, L., & Boardman, F. K. (2011). Accessing the field: Disability and the research process. Social Science and Medicine, 72(1), 23–30. https://doi.org/10.1016/j.socscimed.2010.09.050

Browne, J., & Dorris, E. R. (2022). What Can We Learn From a Human-Rights Based Approach to Disability for Public and Patient Involvement in Research? Frontiers in Rehabilitation Sciences, 3(April), 1–6. https://doi.org/10.3389/fresc.2022.878231

Canadian Institute of Health Research. (2022). Findings from CIHR Environmental Scan on Accessibility and Systemic Ableism in Research Funding Systems 2021-2022. Retrieved from https://cihr-irsc.gc.ca/e/53280.html

CAST (2018). Universal Design for Learning Guidelines version 2.2. Retrieved from http://udlguidelines.cast.org

Center for Universal Design. (1997). The principles of universal design. Retrieved from https://design.ncsu.edu/research/center-for-universal-design/

Croft, L., Harrison, E., Grant-Young, J., McGillivray, K., Sebring, J. C., & Rice, C. (2024). Toward access justice in the academy: Centring episodic disability to revision research methodologies. International Journal of Qualitative Methods, 23, 16094069241227075.

De Picker, M. (2020). Rethinking inclusion and disability activism at academic conferences: strategies proposed by a PhD student with a physical disability. Disability and Society, 35(1), 163–167. https://doi.org/10.1080/09687599.2019.1619234
 
Dee-Price, B. J. M., Hallahan, L., Nelson Bryen, D., & Watson, J. M. (2021). Every voice counts: exploring communication accessible research methods. Disability and Society, 36(2), 240–264. https://doi.org/10.1080/09687599.2020.1715924
 
Frankena, T. K., Naaldenberg, J., Cardol, M., Garcia Iriarte, E., Buchner, T., Brooker, K., … Leusink, G. (2019). A consensus statement on how to conduct inclusive health research. Journal of Intellectual Disability Research, 63(1), 1–11. https://doi.org/10.1111/jir.12486

Frankena, Tessa Kim, Naaldenberg, J., Cardol, M., Linehan, C., & van Schrojenstein Lantman-de Valk, H. (2015). Active involvement of people with intellectual disabilities in health research - A structured literature review. Research in Developmental Disabilities, 45–46, 271–283. https://doi.org/10.1016/j.ridd.2015.08.004

Fraser-Barbour, E., Robinson, S., Gendera, S., Burton-Clark, I., Fisher, K. R., Alexander, J., & Howe, K. (2023). Shifting power to people with disability in co-designed research. Disability & Society, 1–22. https://doi.org/10.1080/09687599.2023.2279932

Greenhalgh, T., Hinton, L., Finlay, T., Macfarlane, A., Fahy, N., Clyde, B., & Chant, A. (2019). Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot. Health Expectations, 22(4), 785–801. https://doi.org/10.1111/hex.12888

Honisch, S. S., & Hill, G. T. (2022). Accessibility in Research : From Design to Dissemination.

Katz, J. (2018). Ensouling our schools: A universally designed framework for mental health, well-being, and reconciliation (Vol. 3). Portage & Main Press.
 
Kenny, N., Doyle, A., & Horgan, F. (2023). Transformative Inclusion: Differentiating Qualitative Research Methods to Support Participation for Individuals With Complex Communication or Cognitive Profiles. International Journal of Qualitative Methods, 22(March). https://doi.org/10.1177/16094069221146992

Khubchandani.A., A. (2012). Guidelines for assessment of and intervention with persons with disabilities. American Psychologist, 67(1), 43–62. https://doi.org/10.1037/a0025892

Kidney, C. A., & McDonald, K. E. (2014). A toolkit for accessible and respectful engagement in research. Disability and Society, 29(7), 1013–1030. https://doi.org/10.1080/09687599.2014.902357

Lau, S., Nirmalanathan, K., Khan, M., Gauthier, C., Maisel, J., & Novak, A. (2020). A Canadian Roadmap for Accessibility Standards. Canadian Standards Association, (November). Retrieved from https://www.csagroup.org/wp-content/uploads/CSA-Group-Research-Canadian-Roadmap-for-Accessibility-Standards.pdf

Loomes, G. (2018). Researching about us without us: Exploring research participation and the politics of disability rights in the context of the Mental Capacity Act 2005. Journal of Medical Ethics, 44(6), 424–427. https://doi.org/10.1136/medethics-2016-104129

Mattison, S. M., Gin, L., Abraham, A. A., Moodie, M., Okanlami, F., & Wander, K. (2022). Community voices: broadening participation in Science, Technology, Engineering, Mathematics, and Medicine among persons with disabilities. Nature Communications, 13(1), 1–4. https://doi.org/10.1038/s41467-022-34711-w

McDonald, K. E., Gibbons, C., Conroy, N., & Olick, R. S. (2022). Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement. Journal of Applied Research in Intellectual Disabilities, 35(1), 170–178. https://doi.org/10.1111/jar.12936

Meyers, A. R., & Andresen, E. M. (2000). Enabling our instruments: Accommodation, universal design, and access to participation in research. Archives of Physical Medicine and Rehabilitation, 81(12 SUPPL. 2), 5–9. https://doi.org/10.1053/apmr.2000.20618

National Disability Authority. (2002). Guidelines for Including People with Disabilities in Research. Retrieved from http://nda.ie/nda-files/Guidelines-for-Including-People-with-Disabilities-in-Research.pdf

Njelesani, J., Mlambo, V., Denekew, T., & Hunleth, J. (2022). Inclusion of children with disabilities in qualitative health research: A scoping review. PLoS ONE, 17(9 September), 1–19. https://doi.org/10.1371/journal.pone.0273784

Paramasivam, A., Jaiswal, A., Minhas, R., Wittich, W., & Spruyt-Rocks, R. (2021). Informed Consent or Assent Strategies for Research With Individuals With Deafblindness or Dual Sensory Impairment: A Scoping Review. Archives of Rehabilitation Research and Clinical Translation, 3(2), 100115. https://doi.org/10.1016/j.arrct.2021.100115

Olsen, J., Griffiths, M., Soorenian, A., & Porter, R. (2020). Reporting from the Margins: Disabled Academics Reflections on Higher Education. Scandinavian Journal of Disability Research: SJDR, 22(1), 265–274. https://doi.org/10.16993/sjdr.670

Ontario Human Rights Commission (n.d.). Glossary of human rights terms. Retrieved from https://www.ohrc.on.ca/en/teaching-human-rights-ontario-guide-ontario-schools/appendix-1-glossary-human-rights-terms

Queen’s University. (2019). Queen’s University facilities accessibility design standards (QFADS).

Rios, D., Magasi, S., Novak, C., & Harniss, M. (2016). Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies. American Journal of Public Health, 106(12), 2137–2144. https://doi.org/10.2105/AJPH.2016.303448
 
Rix, J., Carrizosa, H. G., Seale, J., Sheehy, K., & Hayhoe, S. (2020). The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments. Disability and Society, 35(7), 1031–1057. https://doi.org/10.1080/09687599.2019.1669431
 
Shariq, S., Cardoso Pinto, A. M., Budhathoki, S. S., Miller, M., & Cro, S. (2023). Barriers and facilitators to the recruitment of disabled people to clinical trials: a scoping review. Trials, 24(1), 1–13. https://doi.org/10.1186/s13063-023-07142-1
 
Spivakovsky, C., McVilly, K., Zirnsak, M. T., Ainsworth, S., Graham, L., Harrison, M., … Genat, A. (2023). The ontology and epistemology shaping our understanding of inclusion: A critical review of the research literature on disability and inclusion. Journal of Policy and Practice in Intellectual Disabilities, (May), 1–16. https://doi.org/10.1111/jppi.12461
 
St. John, B. M., Hickey, E., Kastern, E., Russell, C., Russell, T., Mathy, A., Ausderau, K. K. (2022). Opening the door to university health research: recommendations for increasing accessibility for individuals with intellectual disability. International Journal for Equity in Health, 21(1), 1–13. https://doi.org/10.1186/s12939-022-01730-4
 
Strnadová, I., Dowse, L., & Watfern, C. (2020). Doing Research Inclusively: Guidelines for  Co-Producing Research with People with Disability. DIIU UNSW Sydney.
 
Swartz, T. H., Palermo, A. G. S., Masur, S. K., & Aberg, J. A. (2019). The Science and Value of Diversity: Closing the Gaps in Our Understanding of Inclusion and Diversity. Journal of Infectious Diseases, 220(Suppl 2), S33–S41. https://doi.org/10.1093/infdis/jiz174

Swenor, B. K., Munoz, B., & Meeks, L. M. (2020). A decade of decline: Grant funding for researchers with disabilities 2008 to 2018. PLOS ONE, 15(3), e0228686–e0228686. https://doi.org/10.1371/journal.pone.0228686

Thompson, T., Coleman, J. M., Riley, K., Snider, L. A., Howard, L. J., Sansone, S. M., & Hessl, D. (2018). Standardized Assessment Accommodations for Individuals with Intellectual Disability. Contemporary School Psychology, 22(4), 443–457. https://doi.org/10.1007/s40688-018-0171-4

Vega-Córdova, V., Álvarez-Aguado, I., Jenaro, C., Spencer-González, H., & Díaz Araya, M. (2020). Analyzing Roles, Barriers, and Supports of Co-researchers in Inclusive Research. Journal of Policy and Practice in Intellectual Disabilities, 17(4), 318–331. https://doi.org/10.1111/jppi.12354

Williams, A. S., & Moore, S. M. (2011). Universal Design of Research: Inclusion of Persons with Disabilities in Mainstream Biomedical Studies. Sci Transl Med., 82(3). https://doi.org/10.1126/scitranslmed.3002133.Universal

World Health Organization (2023). Disability. Retrieved from https://www.who.int/news-room/fact-sheets/detail/disability-and-health#:~:text=An%20estimated%201.3%20billion%20people,earlier%20than%20those%20without%20disabilities